Stiff Person’s Syndrome

23
Jan 2014
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tina ceroni ctv am 2

Tina Ceroni on Canada AM: ‘I have a whole new lease on life’

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As we reported yesterday, Tina Ceroni, with the help of Dr. Harry Atkins, shared her story with Beverly Thomson today on Canada AM.…

As we reported yesterday, Tina Ceroni, with the help of Dr. Harry Atkins, shared her story with Beverly Thomson today on Canada AM.

Tina is an accomplished athlete and fitness trainer who was diagnosed with Stiff Person Syndrome (SPS), a rare autoimmune disease that affects one in a million people.

In her mid-20’s Tina started experiencing mild spasms and rigidity in her legs. She always assumed they were due to her training regime. She was eventually diagnosed SPS. The contractions and spasms became so severe that she required frequent trips to the emergency ward to save her life.

In April 2011, Tina received a stem cell transplant at Ottawa General Hospital.

The procedure performed by Dr. Atkins is very intense. Strong doses of chemotherapy “kill” the immune system in order to create a new disease-free immune system seeded by stem cells.

“There are risks of severe organ failure or even death,” Dr. Atkins explained on the program.

“It is a challenging process and it takes time to recover from something like that,” added Tina.

Today Tina is completely symptom free. “There are no words to describe how amazing I feel now. I have a whole new lease on life and no limitations on what I can do.”

Click here to watch the interview.

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22
Jan 2014
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CANADA AM

Canada AM to broadcast the Tina Ceroni story

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Back in December 2013 we told the story of Tina Ceroni, an accomplished athlete and personal trainer who was diagnosed with Stiff Person Syndrome.…

Back in December 2013 we told the story of Tina Ceroni, an accomplished athlete and personal trainer who was diagnosed with Stiff Person Syndrome. The extremely rare neurological disorder triggered a series of episodic attacks during which her muscles would tighten mercilessly — putting her life at risk.

Tina underwent stem cell transplant treatment at Ottawa General Hospital under the care of Dr. Harry Atkins in April 2011. She is now back running and cycling and has resumed her career as a personal trainer.

Tina is scheduled to share her story, with help from Dr. Atkins, on CTV’s Canada AM tomorrow morning at 8:05. Catch it live or watch for a link to it to appear here soon.

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