Archive for May, 2010

MS and Stem Cells: These scientists are on to something

The Canadian MS Bone Marrow Transplant Research Study is a MS Society-funded project to determine whether transplanting bone marrow stem cells in people with MS can stop the disease. Led by Drs. Mark Freedman and Harold Atkins at the Ottawa Hospital Research Institute and University of Ottawa, the study began in August of 2000. Ten years later, more than half of the 26 patients enrolled have seen their symptoms stabilize and, in many cases, actually improve, unheard of results in the treatment of MS. Yet few people know about this research. As part of our month-long focus on MS and stem cells, we will speak with people involved in every aspect of this study: the doctors and researchers, patients and their families and the people behind the scenes. Today, Sue-Anne Lecompte, a patient in the study, shares her story of MS.

Q: When were you first diagnosed with MS?

A: I was 38 when I was first diagnosed with MS. It was the spring of 2003 and I had been living a pretty active life — building a career, and a home and life with my husband.

My first attack started on a Friday and progressed for seven days with a vengeance until I could no longer walk, talk or use the left side of my body. This resulted in my first five-month stay in the hospital. It took another two or three such hits and a lumbar puncture to confirm the disease. Then I began a three-month stay at a rehabilitation centre to relearn how to walk, use my left hand and speak.

In the first months of 2004, my MS hit again and again. I became quite good at relearning each time what had been lost. Over and over this went on until I received the stem cell transplant in 2009.

While enduring this five-year carnival ride, I was treated with steroids, injectables and chemotherapy. None of these treatments seemed to stabilize or even modify the disease. It just kept hitting – different hues of the same type of stuff, with varying degrees of handicap.

Q: How did you find out about the Canadian MS Bone Marrow Research Study?

A: I found out about the study after watching a story on W-5 in 2004. I met with Dr. Atkins for a chemotherapy treatment in 2005, and Dr. Freedman that same year, to inquire about what I had seen. At that time, Dr. Freedman indicated that I would be using a wheel chair full-time within five years if the disease continued at the same rate. But luck had turned my way and I had the chance to hear about this research study from “the horse’s mouth.” Talk about two lucky appointments. I was accepted into the trial in 2008, five years after I had first been diagnosed.

Q: How did being a patient in the study affect your life?

A: It was my first experience as a patient in a research study, and the implications of this were huge. The study always came first. There were hospital visits, tests and an immense amount of recovery time. My husband turned into my chauffeur, my cook, my second set of ears, my sounding board. Luckily, we live in Ottawa so we didn’t have to move for the trial, but the study still took its toll, financially, time-wise and emotionally.

Q: How did you prepare to enter the study?

A: I informed friends and family that I would need support and understanding, and that this study was pretty dangerous. Given the chance of death, I prepared a will.

Physically, I stayed as healthy and fit as possible. I underwent many medical tests. But I was totally available because I had been dreaming about being healthy for a long time and I was willing to do anything to fulfill that dream.

Q: What were your expectations and fears going into the study?

A: I had neither fear nor expectation. The study was totally transparent and I thought it made perfect sense. Nothing in life is without chance and I was willing to take any chance to be healthy. Furthermore, I believed in the research and its conclusions. It was my chance to alter the course of this hateful disease.

Q: What kind of changes did you see in yourself after getting the stem cell transplant?

A: Directly after the treatment, I could wiggle my toes and walk 400 metres with three short rests. After three months, I could cook my own meals, bathe myself and walk 400 metres without stopping and with no leg brace or cane. Six months after the treatment, I could walk 800 metres without stopping and without support. I could put on my own earrings and chew gum, which I hadn’t done in seven years.

Q: What do you want people to take away from your story? What do you want them to know about stem cell science?

A: This treatment works. It’s not easy and you must commit wholeheartedly, but I want people to know that these scientists are on to something.

This past Easter, one year and three months post-transplant, I wore high heels for the first time in seven years. Who knows what lies ahead for me? I do know that I can now make plans for tomorrow!

Sue-Anne Lecompte is married to Gilles. She loves the outdoors, her pets and most of all life. She believes her stem cell transplant has allowed her to make plans for a new tomorrow.

MS and Stem Cells: It’s happening right now

The Canadian MS Bone Marrow Transplant Research Study is a MS Society-funded project to re-grow the immune systems of patients with MS using stem cells. Led by Drs. Mark Freedman and Harold Atkins at the Ottawa Hospital Research Institute and University of Ottawa, the study began in August of 2000. Ten years later, more than half of the 26 patients enrolled have seen their symptoms stabilize and, in many cases, actually improve, unheard of results in the treatment of MS. Yet few people know about this research. As part of our month-long salute to MS and stem cells, we will speak with people involved in every aspect of this study: the doctors and researchers, patients and their families and the people behind the scenes. In these three videos, Dr. Harry Atkins gives an overview of stem cells and how they’re being used in this study. Videos courtesy of the Canada Science and Technology Museum.


YouTube Direct Link 


YouTube Direct Link 


YouTube Direct Link 

Today is World MS Day — It’s Time to Take Action

Today is World MS Day. People from around the world are raising awareness about the more than 2 million individuals who are living with MS. And they are taking action to demonstrate their support and to search for a cure.

In Canada, between 55,000 and 75,000 individuals have Multiple Sclerosis – it is unpredictable, affecting vision, hearing, memory, balance, and mobility.

The MS Society of Canada is committed to supporting Canadians living with MS, and to funding research to find a cure. This month, the Canadian Stem Cell Foundation has told you about how important stem cells are in this work. They have shared the stories, experiences and insights of people living with MS and from those committed to finding a cure. We thank the Foundation for their leadership and we encourage them to continue their work.

Today is a day for you to show your leadership as well. I encourage you to think about what you can do to support those who are searching for a cure. Take a moment today and take a small action—show your support at worldmsday.org, sign the Stem Cell Charter or get involved locally.

Sincerely,

Yves Savoie
President & CEO
MS Society of Canada

MS and Stem Cells: Time is Brain

The Canadian MS Bone Marrow Transplant Research Study is a MS Society-funded project to re-grow the immune systems of patients with MS using stem cells. Led by Drs. Mark Freedman and Harold Atkins at the Ottawa Hospital Research Institute and University of Ottawa, the study began in August of 2000. Ten years later, more than half of the 26 patients enrolled have seen their symptoms stabilize and, in many cases, actually improve, unheard of results in the treatment of MS. Yet few people know about this research. As part of our month-long salute to MS and stem cells, we will speak with people involved in every aspect of this study: the doctors and researchers, patients and their families and the people behind the scenes. Today, an interview with Dr. Mark Freedman.


YouTube Direct Link 

MS and Stem Cells: It amazes me that I have a new immune system

The Canadian MS Bone Marrow Transplant Research Study is a MS Society-funded project to determine whether transplanting bone marrow stem cells in people with MS can stop the disease. Led by Drs. Mark Freedman and Harold Atkins at the Ottawa Hospital Research Institute and University of Ottawa, the study began in August of 2000. Ten years later, more than half of the 26 patients enrolled have seen their symptoms stabilize and, in many cases, actually improve, unheard of results in the treatment of MS. Yet few people know about this research. As part of our month-long focus on MS and stem cells, we will speak with people involved in every aspect of this study: the doctors and researchers, patients and their families and the people behind the scenes. Today, Cathy Nabuurs, a patient in the study, shares her MS stories.

Q: When were you diagnosed with MS?

A: I was diagnosed with MS in January of 2001 at the age of 28. I was beginning my career as a speech-language pathologist and had been married for about three years.

Q: What kind of symptoms prompted you to see a doctor?

A: I was experiencing vertigo, numbness and tingling in my extremities. Later on I had dexterity issues and difficulty with gait, muscle strength, pain and fatigue.  When I was first diagnosed with MS, I was given a disease modifying drug. It was not very effective for my type of MS and my disease continued to worsen. In 2006, I was told that I had progressed to a more aggressive form of the disease known as Secondary Progressive MS.  My body was now experiencing continuous progression without attacks or remissions.

Q: When and how did you find out about the stem cell trial?

A: I originally heard about the stem cell trial on a local news radio show. This was before I was officially diagnosed with MS but was experiencing symptoms and suspected something neurological.

Q: What was the process of being accepted into the trial?

A: There were three factors: I had to be physically fit (with normal function of the heart and lungs), I had to have Secondary Progressive MS, and I had to have had unsuccessful results with a disease modifying drug.  I was accepted in January of 2007 and my family relocated to Ottawa for a year. My husband was able to come with me and my parents also were extremely helpful and supportive. They moved to Ottawa and lived with us for four months. This was great for our children because they had some sense of normalcy in their lives.  Before departing for Ottawa, our friends and family organized a benefit event which raised significant money and was a huge help. Without all the support, this treatment would have been much more difficult.

Q: How did you prepare to enter the study?

A: My son was five years old when I entered the study and I needed to explain to him the purpose of our move and what was going to happen to Mommy in the simplest of terms. It was very difficult for me as a mother with two small children (ages five years and nine months).   The worst case scenario  was the slight possibility that I would die. Dr. Freedman and Dr.Atkins made sure that we didn’t make the decision lightly, which I greatly appreciated. And I was the 16th subject in the study, so I felt very encouraged. Physically, I had to undergo many tests and procedures to ensure that my body was up for the treatment. At each stage of testing, there was a chance that I would no longer be eligible for the treatment. The doctors had to be certain that my body was strong enough to make it through the chemotherapy. I was very nervous that the results of this testing would not be favourable.

Q:  What were your expectations going into the study?

A: I was given a copy of the treatment protocol to review. Dr. Atkins and Dr. Freedman were very helpful with my questions. and reviewed each step so that I could fully absorb the information. This was extremely helpful and comforting.

Q: What was the treatment like?

A: It was a very difficult procedure, but also very beneficial and life changing.   The first step of this process involved having my medical files submitted to the ethics committee. After we received their approval, I had to undergo many tests and procedures prior to moving to Ottawa, to ensure that I was physically fit for the transplant.  In May 2007, the first significant medical procedure to be performed was a bone marrow harvest. It was performed as a precaution so that my bone marrow could be used to re-grow my existing immune system if the new one did not grow as expected or if for any reason the transplant was unsuccessful. The next step was the harvest of my stem cells which were then purified and frozen until my body was ready for them.   The following step was the most risky and difficult. It was the eradication of my existing immune system through heavy doses of chemotherapy (25 doses), in order to make way for a new, healthy immune system.  After the last day of chemo and a day of rest, I received my purified stem cells.

Q: How did you feel  throughout the different steps of the study?

A: I was very nervous prior to starting the trial, however, once I arrived in Ottawa I knew that I was in very good hands. The doctors and nurses were very sensitive and caring to me and my family.  The hardest part for me, emotionally, was seeing my children while I was in the hospital receiving the chemotherapy. It was wonderful to be able to see them on a regular basis, but it was tough to watch my oldest child, Ethan, who was five years old at the time. During our talk before we left for Ottawa, I explained to him why we were moving. This treatment was going to make Mommy better. This is why it was so difficult for him when he saw the effects of the chemotherapy. The look on his face clearly revealed his thoughts that Mommy was not getting better, only worse. It was also very hard for me to see my one year old daughter as well, because I wasn’t able to really hold her.  During the chemotherapy treatment, I was very ill. On one particular day, I remember saying to my husband that I was finished with the chemotherapy and I wanted to go home. My husband looked at me and said “No…you started this ride and now you have to finish it”. I knew this deep down, but it was just a very hard day and I needed a push.

Q: What were the outcomes of the study for you?

A: The biggest change that I saw three months post transplant, was that I was no longer nauseated and I could keep my food down. Halloween night was the first time I felt strong enough to eat and keep food in my stomach.  I think that it was sheer Mommy determination that helped me get through trick or treating with my husband and children.  Last year, I was feeling stronger, but my immune system was still fairly new, and I would pick up colds and flues very easily. I was not able to receive the flu shot until this year because of the age of my immune system. This year, I feel terrific. I have had only a few colds.  I feel stronger and as a result I am able to exercise and work a little bit, without getting ill.  This August will be my third year anniversary of the stem cell transplant. There have been improvements, most noticeable has been the decreased fatigue.  Prior to the transplant, I had to have naps at least five days of the week. Now, I don’t nap unless I am sick with a cold or if I’m extra busy with my children (ages 3 and 8).  I’ve also noticed increased strength in my legs.  The indisputable proof that this treatment has been successful is in the results of my bi-annual MRI scans.  My brain and spinal cord show no new signs of the disease as there are no new lesions on any of my MRIs since the treatment.

Q: How has the study affected your life?

A: I have a new lease on life which is hard to put into words.  My family and I have been given a second chance and I will always be extremely grateful for this and indebted to the doctors, nurses, family and friends who helped us make this a reality.   At my last check up in Ottawa in February, my rating on the MS disability scale was a 2.0. Prior to starting the study, I was a 3.5.  The transplant was successful and today I have an immune system which shows no signs of disease activity.

Q: What are your hopes for the future?

A: It would be nice to have more myelin repair, but I would be very happy if my body can stay the way that it is at this present time.  I am just so relieved and overjoyed that I can play an active part in my family’s life. Without the support of my family, I would not have been able to get through the treatment. They helped me to fight this illness and the effects of the chemotherapy in the hospital.

Q: What do you hope people take away from your story? What do you want people to know about the trial and about stem cell science?

A: I would like people to know that there is hope. I am living proof of the success of this trial. I know that I am extremely fortunate and I will never take that for granted.  I look at the results of this trial as miraculous. It still amazes me that I have a new immune system and my body has no memory of the MS. Sure I have the old lesions to contend with when I am ill or tired, but my hope is that they too will fade away physically and emotionally.

Cathy Nabuurs and her family were recently named the 2010 MS Family of the Year for P.E.I. Read about it here.

MS and Stem Cells: A behind the scenes look

The Canadian MS Bone Marrow Transplant Research Study is a MS Society-funded project to re-grow the immune systems of patients with MS using stem cells. Led by Drs. Mark Freedman and Harold Atkins at the Ottawa Hospital Research Institute and University of Ottawa, the study began in August of 2000. Ten years later, more than half of the 26 patients enrolled have seen their symptoms stabilize and, in many cases, actually improve, unheard of results in the treatment of MS. Yet few people know about this research. As part of our month-long salute to MS and stem cells, we will speak with people involved in every aspect of this study: the doctors and researchers, patients and their families and the people behind the scenes. Today, an interview with Marjorie Bowman, RN, the Research Coordinator for the study.

Q: What’s your role in this study?

A: The study is headed by Dr. Harry Atkins and Dr. Mark Freedman, though there are many people involved. Dr. Atkins is the bone marrow transplant physician, he oversees the stem cell transplants; Dr. Freedman is a neurologist who specializes in MS; and I’m the Research Coordinator. We’ve all been involved in the study from the very beginning, and my role has evolved quite a bit over the past 10 years.

At the very beginning, my job was to get the study up and running — submitting and getting approval from the ethics board — which is a huge process; developing all the data collection tools and forms, and getting everything set up within the hospital. It was big learning experience for everyone involved because the clinics at the hospital hadn’t done a lot of research transplants, so it was very different.

Another big part of my job early in the study was screening and speaking to potential patients. When we received the grant from the MS Society of Canada, there was a big announcement on their website and word spread quickly among the MS community. When I started my position, the MS Clinic had been keeping a list of all the people who had called to inquire about the study. So I had this list of patients that I had to contact and screen. There were 20 patients on this list. With a lot of the inquiries, you know right away that they’re not going to meet the criteria, but you still have to speak with them and explain the trial.

And that was the first year. We developed the protocol, and got everything in place. The first patient received a transplant in October of 2001.

Q: What was it like once you started seeing patients?

A: With the first patient, it was a matter of working through the protocol we had developed step by step, and it was a big learning experience. The protocol has evolved with the study, and we’ve kept up with changes in treatment and technology.

Pre-transplant, we did all the screening. We had to make sure the patient met all the inclusion criteria, and then go through the consent form with them and have them sign it, which is a process. The patients had two counseling sessions prior to signing the consent form, one with Dr. Atkins and one with Dr. Freedman.

Then, the patient goes for a first baseline visit, where they have all the neurological testing and blood work done, and then safety testing to see if they are a good candidate for the study. If they had any illnesses besides MS, they were excluded from the study. So we were testing the heart, lungs, things like that. I coordinated all that, all the testing and visits. I worked very closely with the patients during this process and got to know them very well.

Once they got to the transplant phase of the study, they were turned over to the bone marrow transplant team at The Ottawa Hospital. During that time, I was the first point of contact if they had any problems.

Once they had been through the transplant, I coordinated post-transplant testing. All the patients have to have lumbar punctures and MRI and MRS scans once a year, plus lots of neurological testing. I was kind of overseeing all that testing.

In the meantime, I was still screening patients and talking to potential patients from all over Canada. And that’s something we didn’t expect. The people from out of town need a little extra support to get here and go through the trial. And there were some very brave, dedicated patients for sure.

Q: How many patients have gone through the trial and how much information are you collecting?

A: Of the 26 patients that have gone through the trial, 24 have actually received stem cell transplants. We have 2 control patients — they had the same inclusion criteria but refused the transplant, and we’ve been following them closely to see how their symptoms compare with those who have received a transplant.

In 2008, we received another grant from the MS Society to follow these patients even further. Originally we followed patients for three years after their transplants. But the investigators weren’t satisfied with only three years. They wanted to follow them longer because we need to see that their MS is stable for a sustained period of time. So, we’re now going to be following the patients until 2012. It’s been such a range of time, because the first patient received a transplant in 2001 and the most recent patient received one in December of 2009. So the last patient will have a three year follow up, but the first will have 11 years. It’s great to be able to follow them for so long and to see the changes.

It’s interesting, my role has evolved with the study, now that the transplants are done, compiling and analyzing the data is a bigger part of my job. We’ve collected literally rooms worth of data on the patients. I have four two-inch binders on each patient, so it’s a lot.

We’re working on compiling all of it right now and preparing to present our findings. We’re going to be publishing for the next 10 years by the looks of it, and we’re hoping to publish our first paper in the fall.

Q: What kind of results have you seen?

A: So, this is kind of a summary: we’ve seen stabilization in many of the patients, which was our goal. It has been exiciting to see improvments in some patients. Some have been able to walk without mobility aids, many have experienced decreased fatigue. Some have returned to work and are now focusing on new goals. After getting to know these patients so well, seeing the improvement in their quality of life has been surprising and rewarding for me.

Q: What has been the most rewarding aspect of working on this study?

A: The most rewarding part of the study has been the patients. Just getting to know them and helping them through this trial has been fantastic. Whenever I was having a bad day, I would think about what these patients were doing and what they were going through.

Q: What are your hopes for the future of the study?

A: I hope that this will become standard care for MS, though of course it’s not for everyone. Dr. Atkins has said that only 5-10 % of MS patients would benefit from this kind of treatment.

But there have been a number of interesting findings, not all strictly related to the transplant. One thing I’m hoping the data from the study will show is that we don’t need to give MS patients so many immunosuppressants, so maybe it’ll lead to less toxic therapies for   all MS patients.

Marjorie Bowman is the mother of two young children. She enjoys reading and playing shinny.

MS and Stem Cells: I still have MS, but I don’t

The Canadian MS Bone Marrow Transplant Research Study is a MS Society-funded project to re-grow the immune systems of patients with MS using stem cells. Led by Drs. Mark Freedman and Harold Atkins at the Ottawa Hospital Research Institute and University of Ottawa, the study began in August of 2000. Ten years later, more than half of the 26 patients enrolled have seen their symptoms stabilize and, in many cases, actually improve, unheard of results in the treatment of MS. Yet few people know about this research. As part of our month-long salute to MS and stem cells, we will speak with people involved in every aspect of this study: the doctors and researchers, patients and their families and the people behind the scenes. Today, an article by Jennifer Molson, a patient in the study.

Image courtesy of The Ottawa Hospital

I was 21 when I was diagnosed with MS. It was 1996, and I was healthy – running two km everyday, working full time, taking college courses and volunteering two days a week with the Ottawa Police Youth Program. I wanted to become a police officer. And, like any girl, I dreamed of walking down the aisle on my wedding day and dancing with my dad and husband.

Then I started to notice tingling and numbness in my arms and hands. I started to feel tired, too tired to run most days, and, when I worked out at the gym, I found the heat exhausting.

My family doctor thought the numbness was due to carpal tunnel syndrome in my wrist and the tiredness a result of working too much and staying out too late. I slowed down a bit, but the symptoms remained. Soon after, I had a lumbar puncture and a MRI scan. The diagnosis: Relapsing/Remitting MS.

Pretty quickly, I was transferred to the MS Clinic at the Ottawa General Hospital run by Dr. Mark Freedman. Over the next six years, I had multiple relapses: I lost function in my arm, experienced numbness in my legs and went through periods of extreme dizziness and nausea. I never knew how or when my MS would strike, and after each relapse I was left with more disability. I realised that becoming a police officer was not in my future.

The summer of 2000 was great, but by September I began to notice a lot of new symptoms and, by the beginning of 2001, I could no longer work. I was barely able to stand, had no sensation from mid-chest to my toes and was constantly nauseous. An MRI scan showed lesions on my brain stem. My diagnosis was changed to Secondary Progressive MS.

That year, Dr. Freedman told me about a new stem cell transplant study for patients with MS. They would destroy my immune system using chemotherapy and then use stem cells from my own bone marrow to essentially grow a new immune system. Their goal was to stop the progression of the disease, not to fix damage that had already been done. The best I was hoping for at that point was to not get any worse.

So, even though the procedure was experimental and involved risks, including seizures, sterility, and even death, my decision was easy. I had tried everything else, so I had no fear. My boyfriend (now husband), however, was terrified, but supported my decision. You know it’s pretty bad when death is a viable option and what you’re doing to help could actually kill you in the process.

After months of tests, surgery, stem cell recovery, chemo treatments and injections I was ready to begin the transplant stage on July 4th, 2002. I had my stem cells harvested, and over the next three weeks they were transplanted into me.

The first six to eight months after the transplant are a blur and involved overwhelming tiredness and lots of medical appointments. My life was scheduled day by day from February of 2002 until the time I was done. Even now, I still have to go for tests and follow-ups, but it’s a longer leash.

When I look back it was probably about two years before I really started to feel better. And it was sometimes so gradual that I didn’t realize I was getting better. One day I realised I had walked to my mailbox and back without a cane. Soon after, I walked into Dr. Freedman’s office and he looked down and said, “Jen, you’re wearing high heels!” For someone who had been wheelchair-bound a couple of years earlier, this was a remarkable thing.

I approach my eighth year post-transplant mark this July. I’m no longer taking any medication. I returned to work full-time, passed my driving test, am completely independent, inside my home and out. I’ve even gone downhill skiing. I was married seven years ago and, yes, I did dance at my wedding.

I still have MS, but I don’t. For many people with this disease, your whole life is spent coping with getting worse. For me, I’m fortunate to be coping with getting better.

Jennifer Molson was patient number six in the Canadian MS Bone Marrow Transplant Research Study. She is also a True Blood expert.

Your Ideas, Your Effort, Your Votes

There are many things we know about stem cells – and still many things we don’t. We know there are many different types – all working to help our bodies function each day. We know that stem cells are central to helping people with leukemia and other diseases through bone marrow transplants and therapies. We also know that they hold tremendous potential to unlock treatment for a variety of other illnesses.

This month we’re focusing on the work that is being done to use stem cells to treat Multiple Sclerosis (MS).

This was your idea. In March,  we asked you to decide which disease area to run an awareness campaign for and you said MS. The fact that May is designated as MS Awareness Month by the MS Society is perfect timing. We will be sharing articles, videos, links and other information related to MS over the course of the month; you can learn more by reading “MS and Stem Cells” below.

In April our focus was on students teaching students, and we profiled a number of people’s efforts to teach others about stem cell science in innovative ways. From Alessandra Pasut, Angela McDonald and Paul Cassar, who work on StemCellTalks to David Kent, who runs scienceadvocacy.org, we heard from students around the world who are passionately and eloquently getting the word out about the importance of this field. Hopefully you had the chance to read their stories. If not, I encourage you to visit our blog.

Also in April, we found out that we were one of five finalists worldwide for an international Webby Award. It was a great honour to be nominated and it made us eligible for a People’s Voice Award. I’m sure you received our (many) emails, so read the article below to find out the results. Your actions throughout the voting process were astounding – from posting on your blogs and facebook pages to tweeting and sending out emails to friends and families. Thank you for that, and for all your support.

James Price is the President & CEO of the Canadian Stem Cell Foundation.

MS and Stem Cells

All month we’ll be posting links to articles, videos and facts about MS and stem cells on our blog and social media pages.

In addition, we have two special projects planned.

The first is a multi-part series about the Canadian MS Bone Marrow Transplant Research Study, an ongoing trial in which a team of researchers are re-growing the immune systems of MS patients with stem cells. It’s pretty amazing stuff, and it’s happening right here in Canada. We’ll be talking to people involved in every aspect of the study: the doctors and researchers, patients and their families, and those working behind the scenes to ensure that projects like this are being funded and incorporated into standard care. The first part of this series is an article (see below) by Jennifer Molson, patient number six in the study.

The second project involves you. People have lots of questions about how stem cells are being used to treat MS. So this month, if you have a question or a message, send it to us. We’ll compile the responses and and pass them along to a team of MS experts: Dr. Harry Atkins, one of the physicians leading the MS Research Study; Jennifer Molson, a patient in that study; and Marjorie Bowman, RN, the study’s Research Coordinator. At the end of the month, we’ll share their responses on our blog.

So get your questions to us – send us an email, post on our facebook page, make a comment on our blog or give us a call – this is a rare opportunity to get answers directly from those treating and receiving treatment for MS.

We hope you’re as excited about these projects as we are, and that you’ll follow along on our blog and social media pages as we explore how stem cells are being used to treat MS.

38 Days in May: Treating MS with Stem Cells

There are some pretty incredible things on the horizon for the treatment of MS, and we plan to share them with you all month long. UPDATE: There are so many things, in fact, that we have extended the month of May by a week. Now you can follow along until May 38th (or June 7th, if you’re using a more traditional calendar).

We’ll be posting a series of interviews with the researchers and patients involved in the Canadian MS Bone Marrow Transplant Research Study, where doctors are re-growing the immune systems of MS patients using stem cells. All that, plus lots of links to articles, videos and facts about MS and stem cells. We hope you’ll follow along as we explore how stem cells are being used to treat MS.